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Real Hope for CDH Affectionately known as "KAYS' KIDS" |
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Dr. Kays' Team Has a 92% Survival Rate for CDH babies born at Shands |
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| Welcome | Treatment | Our Members | Our Children | FAQ's | CDH Links | ||
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The mission of the Real Hope for CDH parent group is to be a patient support group offering information on our experiences with CDH and the "gentle ventilation" technique used to treat our children. Some of our members are located in Northern Florida near Shands hospital; however, we have members as far away as Ohio, Arizona, West Virginia, Illinois, Colorado and Virginia who have traveled to Gainesville to benefit from Dr. Kays' success with Congenital Diaphragmatic Hernia babies. If you would like to contact one of our member parents with any questions you may have, here are a few of our support group members below. Mark and Debbie Bennett rocket83@truvista.net SC Ingrid & Ismael Berrios ingridbofill@hotmail.com 787-233-0022 (PR) Krista and Mark Bold kmbold@msn.com 602-793-6524 AZ Judy & Ray Bunch judithbunch@bellsouth.net 904-982-6719 FL Sue & Marty DiFusco sdifusco@msn.com 847-776-9126 IL Rene' & Jamie Fields jamieandrene@myexcel.com 304-346-2499 WV Cathie & Carl Firestone cfirestone@centurytel.net 216-533-4476 OH Mike Gallagher asuboy34@yahoo.com 651-303-0574 MN Heidi Gardner heidigardner@verizon.net 703-471-0866 VA Kim and Dan Hassett danfish316@aol.com 850-689-2918 FL Teresa Hastings teresahastings17@bellsouth.net 904-810-0553 FL Janice & Jason Kennedy janicekennedy@msn.com 440-377-5646 OH Maria & Chris Leone mc42499@netzero.com 239-466-6237 FL Shayni & Frank Miller Shaynimiller@aol.com 515-282-3925 IA Amanda Mills amanda51381@yahoo.com 517-531-7137 MI Jonathan & Sarah Morgan morgans0912@bellsouth.net FL Noah has a blogspot Rusty and Liz Rich liz@elizabethsandner.com 205.879.3937 AL Anne Scherff anne_scherff@anchorlink.com 651-351-5170 MN Cathy & John Snow cathybsnow@comcast.net 904-731-9183 FL Elizabeth & Darin Toney dtoney1140@aol.com 904-291-0998 FL Shelli & Kevin Tracy sqtracy@earthlink.net 941-235-2585 CO Craig and Kelley Wheeler kelleywheeler@earthlink.net 704-845-3022 NC TJ and Stephanie Williams steph48@cox.net 480-917-0219 AZ
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